When I first developed Rheumatoid Arthritis one of the main things I was worried about was relationships with the opposite sex. I was worried about everything! During a counseling session, the counselor said, “If he doesn’t like you for who you are, if he can’t love you for you, he is simply not the one, end of discussion. You are probably more worried about being seen as weak or needy given you have a superwoman complex.” In my head response:”Well! I never!!!!”
So as I cleared my throat, and swallowed that chunk of truth, I responded with “Superwoman complex? Do tell…”
Anyway, as life has gone on, it’s been easier to say “Hey, dude, I have RA and blah blah blah.” Most guys are like “Oh, okay. No problem. What do you need? Do you need anything? How are you feeling today? What movie do you want to see? What’s for dinner? Etc etc….” They don’t care much. You get an occasional jerk, but I figure he was born that way.
To my surprise, relationships and family have not been the hardest thing for me. The hardest thing for me has been developing and on going friendships. First of all, I don’t take the word friend lightly. It’s in a category with love. I do use it when shared energy is among myself and another person. I hope you can understand that.
Friendships and associations were and are difficult for me. I was use to being everywhere at one time. On the go. Move move move. Let’s do this. And somewhere as a person with RA or Fibromyalgia you began to lose a connection with some people because:
1. They don’t get why you hurt so much and why you can’t do the simplest things. They don’t understand how you can be so tired. They don’t understand how you were just fine two minutes ago and now you are not. They do not understand why peace, quiet, and no drama is important to your health.
2. You want to go but, you just don’t feel like being around certain people. People can work your last nerve. Especially, when the positively negative crew is on deck. I thought this was a party not Wrestle-mania . YOU LIED TO ME!!!! (dramatic scene)
3. They don’t believe you are ill. They will never tell you that outright (cowards!) but oh do they consistently imply. You know you don’t look sick.
4. I don’t feel comfortable. Sometimes, having all of these things interfere with your life on a daily basis gets to me. I long for myself and I have no idea who this “new” person is after 5 years going on 6 with RA and I am just not use to her. I am still trying to figure it out.
5. New people also think you are flaky. She said she was coming, she said maybe…she always says maybe. Hey look, give me a minute.
6. Patience. If we are going to deal with each other we need patience. Patience is something missing in most of us. I struggle with having patience with myself tremendously. I guess that is why I don’t bother when others don’t.
So, I navigate the waters of friendships and associations with a long rowing paddle. Plus, I am a Pisces who doesn’t let everyone in my castle. Sure we can play on the front lawn and the palace porch, but come in? I don’t know about that. Meet me in the courtyards. I have to trust you. I have to trust you won’t see me as I sometimes see myself. Weak and vulnerable to RA but, never weak and vulnerable. Yeah…double talk.