Sunday Morning Coffee Musing:RD/Fibro Blog: I Want to Play, Too

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You remember what it’s like to get sick as a child and friends are outside playing. You hear the laughter, you see them running around playing a game of hide and seek, or playing with their superheroes or dolls. You say to your mother, “Mom, I want to go outside and play, too.” She says, “I know honey. But, you can’t. You’re sick and you have to get well first.” So, there you go. Back to the window to watch your friends play. Until you feel well again.

This is exactly how I feel many times as I watch the events of family, friends, and other events that play before me live and in living color on social media. I sorely wish I were there, too. Creating memories. Laughing along. Right there in the moments captured forever. Especially, the very big moments and events. I and so many others who live with chronic pain also live with unpredictability of the symptoms. And there we are. Trapped in the house, until the symptoms subside enough for us to go out to play again with everyone else. You may be disappointed and you probably understand. But no one, and I mean no one, is more disappointed and upset or even as angry as we are. We are many times at the mercy of a body we cannot control. And, for the record, many of the other times you see us out living it up, selfies and all, we are smiling and playing through the pain. Tough guys and gals we are indeed!

It makes me happy to see others happy and enjoying life. I know I will be there in the moment soon again. When you realize it’s not about others or you and your pain all the time, but it is collectively about sharing in the joy and laughter of others lives that fills your heart whether you are there physically or through videos, listening to the stories behind each memorable moment and looking through photos. Energy is energy and sometimes you have to experience it at different frequencies. Accept and embrace. Sad that I can’t be there? Yes. But the happiness that you are there, friends and family are there, enjoying life is greater than my sad moment…that shall pass.

~Nikki

 

RA Blog: All Eyes on Me (Thee)

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It seems as if everyone else is whizzing right past you as you “mosey” along or perhaps you are not moving at all. Maybe, you are stuck. Well, I have goals because I set goals. I have dreams and new dreams, new visions, things I want to see happen in the face of Rheumatoid Arthritis, Fibromyalgia and all of that other noise that seems to slow me down and sometimes get the best of me.

In the effort to lose weight, to achieve my other goals as well, it seems as if the well abled bodied people are just flying right past me. Soaring to their goals, and I, I am left behind in their dust. Me? I’m struggling to stay motivated. I can’t walk that fast, like I use to. I can’t use my hands very well today, I can’t stand as long as I use to, the fatigue…it’s what some call excuses, but it’s a reality for many of us. We are not who we use to be and oh if we would have known this was coming, we may have did the 5K or went back to school sooner.

Q: Dear God, Universe, Creator, Self, Spirit, how do I deal with all the feels of being left behind?

A: Take your eyes off others and put your eyes on me. Keep your eyes on “your” prize. Stop the comparison. It’s unfair and foolish to compare yourself with well abled bodied people and it’s unfair to compare yourself to the old self. You can’t be in the past and present at the same time. This is why you are not progressing as fast or at all.

So, with that revelation, I invite you to meditation and prayer. Center yourself during the times when you are “feeling” so much despair and disappointment. If I keep watching others I will fall. If I keep comparing myself to others, I will fail. If I keep living in the past, I can’t work in the present to prepare for my future. All eyes on the Creator. All eyes on the scriptures, affirmations, practices, that center your heart and mind.

~Nikki

RA BLOG:Hoping to Look Back and Forget

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This is fresh off the press this Saturday evening as I am trying my best to wind down from disturbing news I received in my mailbox. Let’s start with this week has been pretty exhausting. A rollercoaster with more lows than highs and all that has been running through mind is “Please, God, let me off of this thing.” No such luck.

My daughter’s 16th birthday is coming up and I have been stressing over how to make it special for the past few weeks. I am going through the disability process in Tennessee and I have been for the last two years and two months. Before I was diagnosed with RA (diagnosed with JRA as a child), I was a working single parent. I promised my daughter to take her to California when she turned 16 as it’s somewhere she had always wanted to go. Well, we know that is not possible during this time. So, we planned to go somewhere closer and with the help of my brother to drive. I can’t tell you the amount of stress, struggle and strain it has been to gather finances from all over the place. To beg and borrow it seems to make this happen. I received terrible news from the school that my daughter had been placed in Algebra II instead of Algebra I and they are just now discovering this! She’s in a honors program. No wonder my poor child had been struggling! And I had been so hard on her. I was livid! Today, I opened up the mailbox to find she would not be allowed to continue in the program because of her GPA. I was outdone. She will have to take summer school class for Algebra I because she must have it. But, how unfair for them as Algebra II is the main cause of her GPA drop. I sent an email to the principal and hope they can see their error and what it has cost my daughter.

Today, I feel my depression in the shadows. I have done the best to keep it at bay. I cannot tell her this right now as she is so happy about taking a trip in a week or so for spring break to celebrate her 16th birthday. She will be crushed and I do not want her spirits crushed. My daughter is very smart and bright. And today…with RA, financial stress, and worried about my daughter’s future, checking the mailbox daily waiting on a word for a day in court about my case, it all just seems to be weighing on me. It’s a bit too much and I just hope someday I can look back and forget the last two years of this hell.

~Nikki

Sunday Morning Coffee Musing: In It’s Time

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Maybe your situation and circumstances are not so beautiful at this time or maybe, like me, it hasn’t been for a very long time. Know that things will be beautiful in it’s time. When it’s time. I am sure a caterpillar may not fill pretty during this phase of its life (can’t say for sure since I don’t speak butterfly, but just taking a guess here), but in it’s time…when it’s time, it is made beautiful. If only it/we knew we are beautiful in many ways in each phase of life. You may not feel it or look like it, but you are to the Creator.

Even in the hard times, the incredibly painful times of my disease and illnesses, I have strength and hope. Even if I only have them in the back of my mind or an afterthought. When I pull through those things, I am made aware of my beauty. Strength is beauty. Hope is beauty. You may not have gotten to this point yet, but when you are made aware of your ability to live anyways, to press on anyways, to rest even (it says you care for your body, and that’s beautiful), you will realize many things can be made beautiful in it’s time. When you become aware…it’s time.

However, there are some situations that take more than awareness of beauty. I find this for me, the waiting or searching for one to connect with on a personal and intimate level. It’s an ugly process for some of us single people. Hoping, searching, waiting, discerning, disappointment….etc…and well…you can find beauty in the fact you don’t give up. Or you can know that in due time, all of that will be made beautiful. If by the one coming along or by you realizing life doesn’t have to be stained by you not finding one or one finding you. Overall, you’ve had plenty to be thankful and grateful for and life has been beautiful because it is life, not because he or she “found” you.

~Nikki

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RA Blog: The “Eyes” Have It

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I woke up Saturday morning and noticed my right eye was a little red. When I returned home later on that evening both eyes were turning red, began to itch and I had pain behind both of them. Like RA in it’s grand fashion…it all happened suddenly. I have had itchy eyes before, swollen eyes, and this. I knew what it was.

It rarely happens to me, but for some it happens more often. I thought I would leave a link to an article that discusses all of problems that can occur with your eyes involving Rheumatoid Arthritis. Please take a moment a read it.

What did I do for my eyes? A cold towel, eye drops, and a naproxen for pain. They were better yesterday and today they are irritated this morning. I will have to give my doctor a call if they do not clear. I have never gone longer than 3 days.

http://www.everydayhealth.com/rheumatoid-arthritis/living-with/rheumatoid-arthritis-eye-complications/

~Nikki