Sunday Morning Coffee Musing: Physical Limitations, Anxiety, & Will They Understand?

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“Nicole, you need to get out. You need to get with people that like to do the things you like to do. You need to go places you like to go and maybe you will meet people that like to do the things you do.” -Therapist

“Sounds like a plan. I am on it.”- Me

And as I began to search for a group, so began the anxiety. “Nicole, you never come around. Nicole, you hardly ever show up. Nicole, why can’t you go here, there, and everywhere. Nicole, I am tired, too. Nicole, I have done 20 things this week and you have only done 5 and you are exhausted? Why don’t you try ginseng, turmeric, more exercise, go gluten free, try the Keto diet, the Mediterranean diet.” Oh-My-Gosh would you please leave me alone is what I think, but I just nod my head. After all, you are just trying to help I suppose.

I joined a few groups and I started a group in spite of these concerns. I don’t know how it’s going to pan out. I don’t know if they will be like most people and “just don’t get it” or if finally, someone will get it. Either way, I will still be who I am with what I have and on a continuous path to growth. Hopefully, I can make some new friends along the way that enjoy the things I enjoy, too.

~Nikki

 

 

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Sunday Morning Coffee Musing: What You Have Need Of

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You’ve been blessed with an inheritance, a lump sum of money, you won the lottery, or you have a good job or career and have managed to put away for retirement. Yet, you worry from time to time or constantly about the future and if you will have enough. Maybe, you are young or old, have a large family or a single parent, and you are doing the best you can. Let me tell you briefly, about my situation.

I am in my early 40’s, approaching my middle 40’s ha! (No, I don’t look it and thank you!) Well, I happen to become ill, could no longer work, blew through my savings to survive and raise a daughter that will be graduating from high school next year. I found myself in the disability process for three grueling years. I won my case. And I thought it would be a sigh of relief and it was. However, like any person that has to start from a setback, start from rock bottom, I worry. But and on my anxiety and man, it takes on a whole other form or worrying. How can I make it off this? What will I do when the surplus runs out? Will my other dreams ever take off so that I don’t have to be on disability? What happens in 3 years when I go for a review? What if they say I am okay and I don’t need it? What kind of job will I be able to do at 46 with my illnesses? Will I ever get the home I want? You see where I am going and then loop that in your head all day. That is anxiety. Go to bed and wake up thinking about the same thing.

This morning I heard this in my spirit, “There is no sense in worrying about tomorrow. Tomorrow has enough trouble of it’s own. You can’t add one day to your life by worrying.”

And then I thought, but don’t you have to plan for the future?

Spirit:”Be wise like the ants. But they don’t worry. And consider the birds in the air, the are fed everyday. The flowers are clothed and they don’t worry.”

Me: “But, what about my dreams, and goal, and plans, and life? What about that abundance? What about prospering? I don’t want to struggle until I die!”

Spirit: “God knows the plans created for you. God knew you before you existed in the womb. God molded and shaped you. You are carefully, and wonderfully me. The Creators plans for you are to prosper and to be in good health. You have choices. Choose life. Choose the things that will better you. Go for it. Do it. Be wise. Use knowledge. And God  knows the number of hairs on your head. Not one falls without his (her) knowledge.”

Me: Let me blog this and hope it helps someone else.

God, the Creator, the Universe, knows what you have need of. God’s plans are always for you to triumph, be at peace, be in good health, and to prosper. But you do have to do your part and if you’re doing your part, researching your part, then do not worry. God will do the rest. The Universe is working for you, always and never against you.

~Nikki

RA BLOG: Bad Blood

It started as a good day yesterday. Even though, it was raining cats and dogs. I managed to take care of a few errands. I started to feel my energy wann around 3:30 P.M. I was going to go home and take a nap before a birthday dinner of a friend. Well, when I got up I felt my shoulder ache. No time for this. I took a shower and asked my daughter to put some cream on it (it’s like a icy hot) because I did not want to take pain medication. It wasn’t 5 minutes after she put it on I began to itch like crazy…all over my back and face. I knew I was having an allergic reaction and it was possibly setting off an itching flare (unexplained undiagnosed flare the doctors can’t determine why or cause). So, I took my last Benadryl and a Fantominide cocktail which calms itching fast (learned that from a nurse in the E.R. when it happened the first time). I had to cancel my plans to go out…so much for margaritas!!! But then around 11:00 P.M. I started itching again…and I had to throw on clothes, make a mad dash to the grocery in rain to get more Benadryl because I was out! My parents are aging, my brother was at work, and other siblings are older than I am blah blah blah…I was on my own. I never want to bother anyone i.e. friends because they live too far and even if they live close…they don’t seem as if they want to be bothered if that makes sense. I’d much rather you bother me, than I bother you.

I made it home. Texted family I was ok. I woke up this morning, but could not get out of bed. Talk to Mom, didn’t tell her I couldn’t get up (didn’t want to worry her=she’ll call everybody-everybody will call me-I don’t want to talk). I got up to shower and discovered my shoulder still hurts, including, hip and knee. I make it out the shower, to the kitchen, put breakfast on at 10:15 and soon realize, I can’t stand long so I push it and sit. And write to you…

I spent money for a very famous fashion show today because fashion is my first love. I did not have money for the all day events and I don’t think I would have lasted anyway. But, to now think I may not even be able to make it to this world renown fashion show is gut wrenching. It is this very moment, well, all night really, I wonder if I can do it. If I can still pursue fashion with this evil disease and at my age of 42. I think about giving up. I think of all the problems that would come with it. I think…if only I was not deterred at a young age to NOT pursue fashion, I would already be doing it and perhaps well established. I know I have the gift. I may not know #@$% else about myself, but I do know that. That is the one thing I have always been confident in and comfortable with.

Getting dressed, doing my natural hair, painting my nails, wearing heels, forcing myself to walk straight, walking a long distance…

For the first time I contemplate if I am in over my head trying to reach for a dream that will not die…

~Nikki

 

Sunday Morning Coffee Musing:RD/Fibro Blog: I Want to Play, Too

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You remember what it’s like to get sick as a child and friends are outside playing. You hear the laughter, you see them running around playing a game of hide and seek, or playing with their superheroes or dolls. You say to your mother, “Mom, I want to go outside and play, too.” She says, “I know honey. But, you can’t. You’re sick and you have to get well first.” So, there you go. Back to the window to watch your friends play. Until you feel well again.

This is exactly how I feel many times as I watch the events of family, friends, and other events that play before me live and in living color on social media. I sorely wish I were there, too. Creating memories. Laughing along. Right there in the moments captured forever. Especially, the very big moments and events. I and so many others who live with chronic pain also live with unpredictability of the symptoms. And there we are. Trapped in the house, until the symptoms subside enough for us to go out to play again with everyone else. You may be disappointed and you probably understand. But no one, and I mean no one, is more disappointed and upset or even as angry as we are. We are many times at the mercy of a body we cannot control. And, for the record, many of the other times you see us out living it up, selfies and all, we are smiling and playing through the pain. Tough guys and gals we are indeed!

It makes me happy to see others happy and enjoying life. I know I will be there in the moment soon again. When you realize it’s not about others or you and your pain all the time, but it is collectively about sharing in the joy and laughter of others lives that fills your heart whether you are there physically or through videos, listening to the stories behind each memorable moment and looking through photos. Energy is energy and sometimes you have to experience it at different frequencies. Accept and embrace. Sad that I can’t be there? Yes. But the happiness that you are there, friends and family are there, enjoying life is greater than my sad moment…that shall pass.

~Nikki

 

RA BLOG: Enthesopathy/Enthesitis

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It started in January and it has not left me yet. I thought it was “just” joint pain from rheumatoid arthritis in the left hip giving me a hard time and keeping me tossing and turning at night. Surely, it will go away. It didn’t and I tried prednisone because I thought I was having a flare. That didn’t do much. I tried naproxen and it didn’t do much either. It got really bad and then during the day, instead of going away it just dulled and would flare at time. I called my rheumy.

“Come in for a shot!” Oh no! I didn’t want that! But as I went the next day, he examined me first and said, “No. You don’t need a shot. You have an inflamed ligament. Let’s try physical therapy. Once in physical therapy, I learned the name of this condition: enthesopathy. The inflammation of it is enthesitis. I have that.

“In medicine, an enthesopathy refers to a disorder involving the attachment of a tendon or ligament to a bone. This site of attachment is known as the entheses. If the condition is known to be inflammatory, it can more precisely be called an enthesitis.”

Last night was awful. It had been nagging a few days. The new pain medicine did nothing. I got some relief with the heating pad. My concern is that this could be a permanent condition and there could be damage as I researched credible sites that said this could be possible for those with an autoimmune disease.

As I try not to worry about it much, and face these things head on, it is very difficult when RA seems to present an obstacle course on top of the obstacle of life.

~Nikki

Sunday Morning Coffee Musing: RA Blog: An Extraordinary Life

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I have a word of encouragement to all, but especially for those who have  rheumatoid arthritisfibromyalgia, lupus or any other illness or chronic pain. You can still live an extraordinary life and you can still leave an extraordinary legacy. Now, how you do that is totally up to you, but I urge you to ask your Source. Whether you are waiting on healing or whether you have accepted this assignment, I don’t know. But in the meantime you must reach beyond your pain and into your heart. And let me point this out to you; the extraordinary is not so much found in what we think we are, material things or grand adventures, who we were before this illness/dis-ease, we were extraordinary then and we are NOW. The extraordinary can be found in everyday things and people that surround us. And most of all within! Maybe you have recently found out you have one of these illnesses or dis-eases and you are devastated. You are trying to find your bearings. Don’t worry you will. I’m speaking from experience and when you do, when you come up with your new game plan, with your new approach to life, I will still urge you to live this life with extraordinary #action #thoughts #compassion #love#truth #wisdom #courage #boldness and #passion. Life itself is #extraordinary all on it’s own. And the truth is while these things physically attempts to wreak havoc on our bodies (succeeding or not) and life, here is something to remember…the real battle is either won or loss in the mind.
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~Nikki