Sunday Morning Coffee Musing: Accepting an Ever Changing You

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All of us have changed physically as we are all aging. Some of us however, have changed physically and it’s not because of aging, but because of some situation, circumstance, accident, incident, illness, or disease. These are the UNEXPECTED changes that affects us physically and mentally. We all seem to have the initial shock of it all, but not many of us embrace it with the same attitudes. Some of us unwillingly accept it in our own time and in our own way. And still, some will never accept it and wither down into a path of despair. If you see them, try to encourage them along the way.

Who’s going to want me after they find out, or see, this or that? It’s a valid question. We live in a judgmental, stereotypical beauty, pretend perfect world. We ourselves have been judgmental perhaps. It’s a terrifying question even if you are married. Will they still want you and how will this change the marriage? Not all remain. Even friends dwindle and relationships fade. Insecurities rise and self esteem tumbles. Imagine not having much of that to begin with and we are looking at developing or increasing anxieties and depression.

Here is the question I ask you, “Do you accept you as you are now?” Maybe you are at the EMPHATICALLY yes stage and maybe you are a definite NO, or somewhere in between. If it’s no or in between then begin the work, yes work of ACCEPTING you as you are. The slow EMBRACE of change, and the ever changing you. Even with my unexpected changes in life, guess what? There will be more. There will be the regular changes of aging and sometimes that happens during the acceptance of the unexpected. A doozey, I know! But acceptance of yourself increases your confidence and helps you brave the fear of the unknown and face the reality. You may not be accepted by someone because of an illness or what you look like now. It may be “too much” for them. Or, you just may be accepted by those that understand and those that can see you for who you truly are or have become.

My journey of acceptance of who I am now was overwhelming. Much like others. However, I am here to tell you that my feet are on solid ground most days. And on the days they are not, I get back up.

~Nikki

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Disability and Reality Head on Collisions

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If you have been following my blog, then you know I am real, honest, and sometimes raw about what I think and how I feel. I am not here for the shock value, I am here because I love people that are honest about their thoughts, feelings, etc. Honest, not rude or mean or nasty. Just the plain old truth. So let’s dive in.

I hate being disabled, but I am grateful that I won my case. I hated my last job, but I was grateful that I had one and it could provide some income. I wasn’t making much and that job was killing me on every level. Yesterday early in the evening I thought I was having some sort of breakdown. I was going down slowly and then boom! I was falling down a dark hole that seem to never end. I reached out for help to a friend that wasn’t available. I reached out to a professional associate, she answered and provided a rope to pull me back to ground. I realized AGAIN yesterday, just how being disabled can restrict, constrict, and confine you financially. It can halt your endeavors. It makes me angry. It makes me sad. It makes me fell worthless. It makes me irrational. It brings up things from the past and shoves them in your face. Sometimes, down your throat. I felt like I could not breathe yesterday. It was anxiety mounting up to a panic attack. And depression was hovering around like a drone.

Before this episode, I had an encounter with a relative. Then I discovered just how limited I was  because of my disability with an endeavor I was trying to start up with a friend. And there came these waves of tears in my eyes that I fought back. By the time I talked to my professional associate, I told her 1st of all, I am crying. Secondly, I am ashamed that I am crying. Crying in my childhood was often made fun of or pointed out by my mother. “She’s so sensitive. She will cry if you look at her.” I thought something was wrong with crying. I also didn’t think it was funny. So crying to me can sometimes bring up a need to apologize for crying. In essence, apologize for being sensitive and weak (according to society, some friends, and in relationships). I do know a good cry is cleansing.

Rules and regulations for disability are necessary. They keep most people from getting over on the system. However, for those of us that wish to do things to help ourselves, it’s often a challenge to figure out exactly what we can do. It’s also a shock sometimes to find out you can’t do certain things and therefore you can’t reap the benefits or joys of those things.

This morning my ground is shaky. But, I am still here. I am still fighting and coping with my thoughts and emotions. This is REAL life. This is a MOMENT that I have to work through. I am fragile in this state and I know I have to protect my mind.

“Weeping may endure for a night, but joy does come in the morning,” -Bible

I am really ready for morning.

~Nikki

Sunday Morning Coffee Musing: Physical Limitations, Anxiety, & Will They Understand?

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“Nicole, you need to get out. You need to get with people that like to do the things you like to do. You need to go places you like to go and maybe you will meet people that like to do the things you do.” -Therapist

“Sounds like a plan. I am on it.”- Me

And as I began to search for a group, so began the anxiety. “Nicole, you never come around. Nicole, you hardly ever show up. Nicole, why can’t you go here, there, and everywhere. Nicole, I am tired, too. Nicole, I have done 20 things this week and you have only done 5 and you are exhausted? Why don’t you try ginseng, turmeric, more exercise, go gluten free, try the Keto diet, the Mediterranean diet.” Oh-My-Gosh would you please leave me alone is what I think, but I just nod my head. After all, you are just trying to help I suppose.

I joined a few groups and I started a group in spite of these concerns. I don’t know how it’s going to pan out. I don’t know if they will be like most people and “just don’t get it” or if finally, someone will get it. Either way, I will still be who I am with what I have and on a continuous path to growth. Hopefully, I can make some new friends along the way that enjoy the things I enjoy, too.

~Nikki

 

 

2018 and The It Is Well Within Me Tour

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My 2018 will not end until March 2019 spiritually speaking. My birthday is my New Year and every year there is something I work on until the next year. This year was about not just things being well within me, like my mental health, physical health or what was going on in my life, etc. But, it was about ME being okay, with who I am, what I want, what I think, how I feel and so on. We can say it was about Nikki becoming not just more, but completely comfortable with her own ideas, her own voice, saying no and not feeling bad about it, pulling back from family drama, false friendships, speaking my truth even it hurt some feelings, and understanding the issues I have, the trauma I have endured will not go away over night. I have to learn to BE WELL with the healing process and to BE WELL WITHIN about it. I can’t hurry up and get it over with, but I can do my part to move it along. I feel like what I don’t want is being filtered out and by the time March rolls around I will be pretty much done with this lesson.

Today I woke up to a low mood. It was last Sunday when I had a really bad bout of depression. Today when I opened my eyes I knew something was wrong and it was hard to get up, start my day. It did not take long to realize I was in another slump, but no where near as bad as last Sunday. Of course I googled the exact feeling that came to my mind: low mood in the morning. And what do you know, morning depression. I found some information from a few credible sites, and then I thought about what was I thinking about last night, all day, all week even. This is something I learned from the psychologist. It may appear as if I wasn’t thinking about anything. And that may be true some times. So, I had to be honest with myself. And I was. And after that, I had to not judge myself harshly the was I have been taught to judge myself, but instead, show myself some compassion. And I did. And I am. Not to mention, I didn’t sleep well last night either. And I haven’t been sleeping well. Some of it is my fault. Some of it is painsomnia.

I will be home tonight for the New Year’s Eve. I don’t want to party with Cardi or anyone lol! I don’t want to go to church either. It’s not my first time being home or being alone as my daughter will be at a sleepover. I am not sad or anything like that. I just want to brighten up a bit, maybe plan out a few things, and get some rest. Hopefully, it will be raining cats and dogs so the ignorant in the city will not shoot guns.

Happy New Year!

~Nikki

Sunday Morning Coffee Musing: “IT”

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I had every intention of going to church this morning. Sunday School included. But, it’s not happening. I am not afraid to say I think it’s mental, emotional, and physical fatigue. Waking up to hip pain didn’t help but really it wasn’t a factor. I think it’s depression, I think it’s the blues, I think it’s boredom. I think it’s been a long time coming because I have seen it before. The snowball of EVERYTHING and here is the strange thing, I still feel the Christmas spirit in the midst. It just so happens that the past few months have caught up with me…I think. I guess. One day isn’t going to fix it. And the truth be told, for the first time ever, unrelated to being single during this time, I can’t wait until the holidays are over. There. I said it. But…I don’t even know if it’s holiday related or if the holidays have exasperated it. This “it.”

I know I am not the only one. Many get like this. It’s just too much of everything and it could be seasonal or it could be totally unrelated. So, what will I do today to get through it. I think I shouldn’t try so hard, push so hard to get through it. I think I should just ease through it. I am getting that this is not the time to barrel through. I feel in my own spirit that this is a delicate time. It’s going to require some honesty about some monumental things in my life that people may not be able to handle, but I can’t die spiritually to make others happy.

~Nikki

Vegas and RA: The Good, The Bad, The Really Bad and Ugly

I have shared with you my wonderful and brief trip in Vegas. The shopping, the entertainment, tourism, my fashion, and family fun. I know it seems so glamourous or maybe not lol! But, anyone can take a trip and it has nothing to do with having a luxurious job, which I don’t have. But, it has everything to do with finding the best deals and planning way, way, ahead. Remember, you can do whatever you set your mind to.

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Speaking of planning, when you have certain physical illnesses and diseases, limitations, etc. you have to learn to plan ahead as much as possible. We who have Rheumatoid Disease, Fibromyalgia, and other illnesses understand our dis-ease can be UNPREDICTABLE. So, this is where experience comes in, Google, and planning ahead as best you can.

  • I forgot my cute and much needed hot/cold reusable water packs. I have a small and a large one I usually take with me. You can find them at TJMaxx or on Amazon.
  • So, that was out! In Vegas there is WALKING, WALKING, WALKING, AND MORE WALKING! However, it is easily accessible for those with wheelchairs if you have one. So, don’t let that deter you from Vegas or anywhere else on this planet. I had my best pair of sneakers. This is not the time to break in a new pair. Go with a sure thing.
  • Pain meds ahead of time if possible. All meds on time. However, if I know I am going to have more than one drink, I will skip my meds. I am just being honest with you. You, however, follow your doctors orders. I’m not that big of a drinker meaning I can have it or not and still have a great time. I am allowed, per my doctor, a glass of wine per day if I want it. It’s not that serious for me.
  • Comfy house shoes with memory foam or something that is plush
  • Pain cream or gel
  • Foldable Flats and a purse that will fit them
  • Epsom Salt

Now, here is where it gets bad and ugly. I love heels and I can still wear them, but not the really high ones I use to wear. I blogged about that journey and halidux rigidus surgery a few years ago. I made the choice and sacrifice to wear some really cute heels to a club to see a celeb DJ. The walk there was fine. The dancing the night away was fine, but when I stopped I knew I was in trouble. The walk back was TORTUROUS. I can’t begin to describe to you the pain I felt. I knew I was going to have more than one drink so I skipped my meds. I had to rely on other methods and time to relieve my incredible pain.

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You are not suppose to walk through the hotel or casino with your shoes off. By the time my cousin and I got close to our rooms, we took off our shoes and sighed the biggest relief! Trust me! The picture below is how we felt after those “contraptions” called heels came off!

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But it did not stop there for me. I was swollen from the feet up to the knees. My feet were as red as fire and the neuropathy felt like shocks and this set off the fibromyalgia. I thought to myself, “WTH! I wasn’t expecting it to be THIS BAD!” But like I mentioned to you before, this disease is very unpredictable. I did not feel my bones hurting, but I figure they would be tomorrow. I could hardly walk on my feet and I had my plush house shoes with me. They only helped a little this time because the reaction was UNPREDICTABLE! I applied the pain cream and NOTHING! NO RELIEF!

 

 

I was like OMG and then I was like Dear God, please let this ease up. I tried to sleep and I could not. Below is a picture of the next evening (note I did well all the next day with my sneakers on), when we were going out again but decided on a fancy dinner instead. This is the results with flat shoes which is what they looked liked the night I took off my heels. I was in so much pain and discomfort that night I wasn’t thinking about anymore photos lol! But no lol! The only difference is the pain was minimum but the swelling was MAX. And the crazy thing is, I wasn’t in these shoes but a couple of hours. My feet were like, “No ma’am! Not again!”

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So, what did I do the night I had on heels and the pain was off the charts. I GOOGLED what to naturally do to ease neuropathy, fibromyalgia, RA. I read until I found something I could do. And here is what I will always want in a hotel from here on out. A good CLEAN (I am so OCD about bathrooms and what they look like) tub I can soak in AND once I get to my destination buy some Epsom Salt! This is my new thing to do or find a small pack if I am flying, to bring with me. Add that to the list. Thank GOD the Luxor Hotel in Vegas had a soakers tub! I filled it up with hot water, grabbed my phone and started a guided meditation session on chronic pain with my Inside Timer App, and soaked for about 20 minutes. I felt 50% better. If I would have had some Epsom Salt, I would probably have been at 75%. I was able to feel the difference and fall asleep.

The meditation app helped because I was in BIG pain and feeling so anxious, defeated, a bit jilted, and was slipping into a “Wish I never had this stupid disease rant” and I miss my old self. The meditation helped bring my emotions down and helped clear my mind and bring focus. Here I was finding the best solution to my problem at the moment.

I wish I could tell you that I won’t do that again. But, I don’t want to lie to you. Vegas is my YOLO ZEN place and it’s only once a year. I don’t how long I will be able to travel because of RA and it’s complications. I can tell you that I will bring a purse big enough for my foldable flats!!! I didn’t think I would need them because where we were going was close to the hotel. I did not factor in how much dancing I would be doing. Oh well, you live, you learn , you survive another day.

I had other pain in Vegas because of the walking. It’s like I said, this is not something I do every day and it’s expected when I travel. In the RA group many had to stop traveling or keep it to a minimum. I think I am midway at 43 with traveling. I have a few places I would like to see and hope I don’t ever have to give traveling up completely.

~Nikki

 

 

 

 

 

 

 

Sunday Morning Coffee Musing: What You Have Need Of

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You’ve been blessed with an inheritance, a lump sum of money, you won the lottery, or you have a good job or career and have managed to put away for retirement. Yet, you worry from time to time or constantly about the future and if you will have enough. Maybe, you are young or old, have a large family or a single parent, and you are doing the best you can. Let me tell you briefly, about my situation.

I am in my early 40’s, approaching my middle 40’s ha! (No, I don’t look it and thank you!) Well, I happen to become ill, could no longer work, blew through my savings to survive and raise a daughter that will be graduating from high school next year. I found myself in the disability process for three grueling years. I won my case. And I thought it would be a sigh of relief and it was. However, like any person that has to start from a setback, start from rock bottom, I worry. But and on my anxiety and man, it takes on a whole other form or worrying. How can I make it off this? What will I do when the surplus runs out? Will my other dreams ever take off so that I don’t have to be on disability? What happens in 3 years when I go for a review? What if they say I am okay and I don’t need it? What kind of job will I be able to do at 46 with my illnesses? Will I ever get the home I want? You see where I am going and then loop that in your head all day. That is anxiety. Go to bed and wake up thinking about the same thing.

This morning I heard this in my spirit, “There is no sense in worrying about tomorrow. Tomorrow has enough trouble of it’s own. You can’t add one day to your life by worrying.”

And then I thought, but don’t you have to plan for the future?

Spirit:”Be wise like the ants. But they don’t worry. And consider the birds in the air, the are fed everyday. The flowers are clothed and they don’t worry.”

Me: “But, what about my dreams, and goal, and plans, and life? What about that abundance? What about prospering? I don’t want to struggle until I die!”

Spirit: “God knows the plans created for you. God knew you before you existed in the womb. God molded and shaped you. You are carefully, and wonderfully me. The Creators plans for you are to prosper and to be in good health. You have choices. Choose life. Choose the things that will better you. Go for it. Do it. Be wise. Use knowledge. And God  knows the number of hairs on your head. Not one falls without his (her) knowledge.”

Me: Let me blog this and hope it helps someone else.

God, the Creator, the Universe, knows what you have need of. God’s plans are always for you to triumph, be at peace, be in good health, and to prosper. But you do have to do your part and if you’re doing your part, researching your part, then do not worry. God will do the rest. The Universe is working for you, always and never against you.

~Nikki